EMA: Brexit update and adoption of work programme for 2018

The last press release published by EMA (European Medicines Agency) on December 15th, 2017, reports some important highlights from the Management Board meeting about Brexit preparation and the adoption of the work programme for 2018. EMA now has just over 15 months to...

Launch of the Parliamentary Advocates for Rare Diseases

On October 17th, 2017, the Parliamentary Advocates for Rare Diseases, a network of European and national members of Parliament advocating to improve the lives of people living with a rare disease, was launched by EURORDIS, the European Organization for Rare Diseases,...

The 4th edition of re(act) congress

From 7th to 10th March 2018, the International Congress on Research of Rare and Orphan Diseases will take place at the Istituto Ortopedico Rizzoli in Bologna, Italy and will bring together world leaders and young scientist, who will share and discuss the results of...

Save the date – TEDDY General Assembly, January 14th, 2018, Rome

TEDDY – European Network of Excellence for Paediatric Clinical Research announces the General Assembly entitled “A new phase for paediatric clinical research: a play role for TEDDY?”, that will be held on January 14th, 2018 at Hotel Ripa in Via degli Orti di...