Encouraging active participation and self-determination of patients and parents in the caring procedure, and promoting their involvement in scientific research and drug development process is the main objective of TEDDY Working Group on “Active engagement of children and adolescents in the themes of clinical research”. According to the TEDDY Statute, a Young Persons Advisory Group (briefly referred to as “TEDDY Kids”) will be set-up composed of at least 5 individuals, both patients and non-patients, recruited by the associates and selected on the basis on their motivation and interest in paediatric research. Associates, who are promoters of existing KIDS groups, will have the right to express at least one representative in the Young Persons Advisory Group TEDDY Kids. TEDDY Kids has the following aims: promotion and coordination between different young persons’ advocacy/advisory groups established all over Europe and outside; peer support and information for children, young patients and participants in pediatric studies; training and engagement of children on issues linked to research; increase in public awareness.
One member from TEDDY Kids elected within the group will participate in the TEDDY Board of Directors.
Further details about the call will be available soon on the official TEDDY website.
If you want to collaborate in this WG, you can express your interest by filling in the form and sending it to scientificsecretariat@teddynetwork.net