In occasion of the fourteenth edition of the Rare Disease Day, promoted by EURORDIS, that will be held on February 28th, TEDDY Network has become a friend and is supporting this great initiative again this year!
The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. TEDDY Network is pleased to welcome this initiative which has started in Europe in 2008 and now involves associations from all over the world.
TEDDY considers the promotion and the coordination of research extremely important for the health care system, and particularly for rare diseases, since they represent the tools with which to speed up the achievements in research and benefits for patients. TEDDY is also strongly engaged in promoting children/fundamental rights particularly relevant for children and patients with rare diseases.
TEDDY Network is also among the beneficiaries of the European Joint Programme on Rare Disease (EJPRD), aimed to create a comprehensive, sustainable system allowing a fruitful collaboration between research, care, and medical innovation in the rare diseases field.
Further information about the Rare Disease Day is available on the website dedicated to the event.
