Project MADAM (Model Adjusted Doses for All Mothers)

Project MADAM (Model Adjusted Doses for All Mothers)

Project MADAM (Model Adjusted Doses for All Mothers) is a collaboration between Radboud UMC and Maastricht University Medical Centres in the Netherlands and the Dutch Teratology Information Service (Lareb) with funding from the Gates Foundation that addresses the gap...

Reducing long-term complications in preterm infants

Reducing long-term complications in preterm infants

In a new study, a team of researchers from Inserm, University Hospital Lille, and Université de Lille at the Lille Neuroscience and Cognition laboratory has opened up interesting avenues to improve the prognosis of preterm infants.   By conducting research into...

#ACT4RARE Toolkit – New UN Resolution Toolkit Launch

#ACT4RARE Toolkit – New UN Resolution Toolkit Launch

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The Second Paediatric Expert Patients Training Workshop was a success!

The Second Paediatric Expert Patients Training Workshop was a success!

The workshop organized by the TEDDY Network in collaboration with EURORDIS and the Sant Joan de Déu Research Foundation in the framework of the European Joint Programme on Rare Diseases (EJP RD), was held the past July 11th -15th at the University of Lyon (France)...

KIDS Albania and KIDS Bari participation in the 2022 iCAN Summit

KIDS Albania and KIDS Bari participation in the 2022 iCAN Summit

TEDDY Network’s young persons advisory groups (YPAG) from Albania (KIDS Albania) and Bari (KIDS Bari) have joined the 2022 International Children’s Advisory Network (iCAN) Summit that was held in-person last July 11th-15th in Lyon, France.  During these intense and...

FDA approval of Vaxneuvance vaccine for use in children

FDA approval of Vaxneuvance vaccine for use in children

The Vaxneuvance, a 15-valent pneumococcal conjugate vaccine, produced my Merck & Co. received approval by the US Food and Drug Administration (FDA) for its use in children aged six weeks through to 17 years, making it the first pneumococcal conjugate vaccine...

Second Paediatric Expert Patients Training Workshop

Second Paediatric Expert Patients Training Workshop

TEDDY is organising the “Second Paediatric Expert Patients Training Workshop” in collaboration with EURORDIS and the Sant Joan de Déu Research Foundation in the framework of the European Joint Programme on Rare Diseases (EJPRD).   The paediatric training workshop will...