The “Training for patient representatives and advocates on leadership and communication skills” course is organised by Istituto Superiore di Sanità (ISS) in close collaboration with EJP RD task partners, open to patient representatives involved in the 24 European Reference Networks (ERNs), including members of the European Patients Advisory Groups (ePAGS), and other RD patient advocates.
The in-person training will take place from November 10th – 11th at ISS in Rome, Italy. However, it may be adapted to an online format in case of uncertainty due to the evolution of the Covid-19 pandemic, or of other adverse conditions that might occur. In case of face-to-face delivery, the organisers have foreseen:
- hotel accommodation for all selected participants
- 4 travel and accommodation fellowships for participants living and working in an EU-13 Country or in Turkey
Registration is currently open and will close on April 13th. The training is limited to 30 attendees, those chosen applicants will be informed by May 3rd, with a reserve list open until May 20th (if the training is delivered face-to-face) or September 9th (in case of online delivery).
More information and registration here.
