We are pleased to announce that our Board of Director member Donato Bonifazi has been confirmed as a member of the Enpr-EMA Coordinating Group (CG) for the 2025–2027 term. This recognition reinforces our commitment to advancing paediatric research and collaborating...
Descriptive Analysis of Pediatric Studies Included in the European Union Post-Authorization Study Register from 2010 to 2023 – Article pubblication
We are pleased to announce that the article titled "Descriptive Analysis of Pediatric Studies Included in the European Union Post-Authorization Study Register from 2010 to 2023", authored by our dedicated researchers, is now available online. This publication...
The OrphaDev4Kids project (OD4K)
OrphaDev4Kids (OD4K) aims to address the issue of insufficient Orphan Medical devices, especially in fields of prominent unmet needs (e.g., cardiology), for use in the paediatric population. In this project TEDDY aims to implement a complex innovation ecosystem in...
Accelerating Clinical Trials (ACT) in the EU workshops
ACT-EU (Accelerating Clinical Trials in the EU) is a Multi-stakeholders Platform Advisory Group, in which our network is contributing to with the definition of the ten Priority Actions (PAs) to drive the transformation of Clinical Research in Europe. The TEDDY...
The European Rare Diseases Research Alliance (ERDERA)
In ERDERA, TEDDY is tasked with the organization of a yearly training program, implemented during a 2–3 day training course, involving 20 young patients (12-18) with rare diseases. This training will be hosted each year for the whole duration of ERDERA, starting from...
TEDDY’s children engagement with the INVENTS PEG
In the INVENTS project TEDDY is tasked with delivering the necessary knowledge and know-how to a young group of young patients affected by Juvenile Idiopathic Arthritis (JIA) or Multiple Sclerosis (MS) through the setup and development of a Patients Expert Group...
Follow up to the 10th iCAN Summit
The month of July 2024 was a memorable one for the TEDDY Network and for the Kids groups that it supports. 90 young people and patients from 15 countries across 4 continents attended the iCAN 2024 Research and Advocacy Summit in Bari, Italy. The summit was organized...
KIDS Kosova – Newborn Advisory Group in the TEDDY Network
Exciting news from Kosovo! Last week, we spent two incredible days in Pristina, diving into the future of clinical trials in Europe's newest country. Led by Donato Bonifazi, member of the Board of Directors of TEDDY and CEO of CVBF, we had the privilege of visiting...
Council of Europe “Guide to children’s participation in decisions about their health”
We are proud to announce that the Council of Europe has released the Guide to children’s participation in decisions about their health. The Guide was prepared by a group of government and independent experts, who included Dr Annagrazia Altavilla, past chair of TEDDY...
iCAN 2024 Research and Advocacy Summit
This year marks iCAN’s 10th anniversary, making the 2024 summit particularly significant. The event will bring together iCAN chapters worldwide for five days, focusing on paediatric research, healthcare innovation, collaboration, and advocacy. This year iCAN will...